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Why rare disease isn't rare | Mark Dysinger | TEDxUniversityofMississippi Analytics Table

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About Why rare disease isn't rare | Mark Dysinger | TEDxUniversityofMississippi

Explore Why rare disease isn't rare | Mark Dysinger | TEDxUniversityofMississippi with 90,027 views, 3,257 likes, and 48 comments. Experience the impact of this video content that has captured audience attention.

Rare things are often highly valued, but when it comes to rare diseases the label may have the opposite effect. Mark Dysinger challenges our understanding of rare diseases and encourages more effective support for the people living with them. MARK DYSINGER is a research scientist at a company that develops therapies for rare disease patients, while taking issue with the label "rare." Dysinger believes that labeling a disease as rare diminishes it to a medical curiosity, resulting in delayed diagnosis for patients. Mark has over 25 years’ experience in the pharmaceutical industry and holds a Master of Science degree in biotechnology from the University of Maryland University College and a bachelor’s degree in zoology from the University of Maine. As a rare disease patient himself, Dysinger's duality as researcher and patient provides him with a unique perspective. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at https://www.ted.com/tedx

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