

What It’s Really Like Going Completely Blind as a Mom of 2 Under 5 ft. Joy Ross
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About What It’s Really Like Going Completely Blind as a Mom of 2 Under 5 ft. Joy Ross
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In this episode of What It's Really Like, host Molly Burke sits down with blind mom, speaker, and longtime YouTube creator Joy Ross. Joy shares her story of growing up legally blind due to juvenile rheumatoid arthritis and uveitis, striving to fit in without using a cane, and eventually losing all remaining vision after a retinal detachment during a family trip to Disney when her two daughters were toddlers. She opens up about processing total sight loss, navigating her daughters' matching diagnoses, and confronting a long list of additional health battles—including progressive hearing loss, autoimmune conditions, and severe facial infections. Molly and Joy dive into what it really takes to adapt and rebuild when life changes dramatically, detailing how Joy learned to navigate motherhood and daily life entirely through touch. They discuss Joy's choice to wear custom "fun" and glow-in-the-dark prosthetic eyes instead of hyperrealistic ones, her experience navigating marital separations and reconciliation with her husband George, and how she overcame the fear of being a burden to find her own identity. They also talk about unlearning social media perfectionism, keeping visual memories alive, and making the intentional choice to find joy and purpose in the dark. Follow Joy Ross: YouTube: [https://www.youtube.com/@JoyRoss] Instagram: [https://www.instagram.com/joyrossblind] TikTok: [https://www.tiktok.com/@joyrossblind] Facebook: [https://www.facebook.com/JoyRoss] Pre-order my children's book, Eltie Takes the Lead! A heartwarming story inspired by the journey of a guide dog puppy, perfect for young readers who love animals and big hearts. Barnes & Noble: https://www.barnesandnoble.com/w/eltie-takes-the-lead-molly-burke/1149412262?ean=9781419778230 Amazon: https://www.amazon.com/dp/1419778234?lv=shuf&channelId=500&plpRedirect=mhFallback 📚 ORDER MY MEMOIR: UNSEEN: How I Lost My Vision but Found My Voice — available now! Tap the link in bio to get your copy. 🐾 Support My GoFundMe for The Mira Foundation (guide dogs for the blind): https://gofund.me/5d8fc57f 🛍 Shop My Amazon Favorites: www.amazon.com/shop/mollyburke (Find my go-to vision boarding book, motivational stickers, and more in the Health & Wellness section!) 🐝 Join the Killer Bee Club on Patreon: https://www.patreon.com/mollyburke 🎧 Listen to my audiobook “It’s Not What It Looks Like” on Audible: https://audible.com/mollyburke 📲 FOLLOW ME ON SOCIAL MEDIA: Instagram: @mollyburkeofficial TikTok: @mollyburkeofficial Twitter: @mollybofficial Facebook: Molly Burke Official 🌐 Learn more about me: http://mollyburkeofficial.com Hi! I’m Molly Burke — a fashion-loving, sushi-obsessed, makeup-wearing millennial who just so happens to be blind. Diagnosed with Retinitis Pigmentosa at 4 years old, I began public speaking at age 5 and haven’t stopped since. From motivational talks to modeling, I’m passionate about creating a more inclusive world for people with disabilities. Even though I can’t see, I believe there’s always a bright side — and I’m here to help you find it. 💕
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